I love my niece.
Makenzie Jo Sedlacek is going to have surgery again tomorrow.
A summary, as sent from my brother via e-mail:
"Last fall, Doctors placed a stent in Makenzie's Left Pulmonary Artery in an effort to increase the flow of "blue" blood to her left lung to be oxygenated. While it was a successful procedure in terms of widening her left pulmonary artery, her little body created layers of material inside the stent, effectively closing up the opening. This fall, Doctors conducted a heart catheterization to try and open it up again, but had difficulty accessing the stent. While they were able to open a portion of it, she still is not getting enough blood to her left lung, which results in too much pressure in her little heart.
For those of you who get to see Makenzie on a regular basis, you know that she does not show any signs of duress, and appears to be a happy and healthy 5 year old. We have debated whether to hold off on another procedure until it became more urgent. However, the sooner we can get better blood flow to the left lung, the better her chances are that the vein structure within the lung will grow.
Next Friday, November 16, we will once again take Makenzie to Fairview University hospital, where she will undergo an open chest (not open heart) procedure to open up the stent."
She should be home in 3-4 days.
I've known for a couple of weeks now that this was going to happen tommorow.
At first, it was completely overwhelming...my brother told me the date over the phone at work. the rest of the day, I had to fight off sudden bursts of emotion, when thoughts of the worst-case scenario would pop into my head.
So I put it out of mind. I refused to think about it, and therefore refused to deal with it.
Until tonight. I can no longer put off thinking about it...Kenzie is going in for surgery TOMORROW morning at 8. They are going to have to open up her chest to get at her heart.
If it is successful, it could mean that she will not have to have any further surgery for YEARS.
I love Makenzie more than anything, and it is so unfair for a little girl so full of energy and life to have to deal with the health issues that she has had to.
To again quote my brother, "At this time, we're looking to friends and family for a couple things.
First is prayer. We pray that the Doctors will be able to open up her left pulmonary artery. We pray that her left lung will take the blood, and get it oxygen, so that her right lung and heart will not have to work so hard. We pray that she will once again recover quickly. We pray that her doctors, nurses and everyone else who watches over her will be up to the task. We pray that this procedure will allow her to grow and enjoy life and not need to come back for further work for YEARS."
The second thing was helping watch over my nephew Tyler so that Jake and Heidi can be with Makenzie/rest.
I can't really describe my feelings of anxiety and helplessness...but all I can really do is just be there, for her, and for my brother and our family.
I love my niece.
